I suffer from chronic daily migraines as well as fibromyalgia. I have some level of headache every day, it s just the intensity that varies. I ve been on and I am still on profalactics for years without success. I ve also tried all of the go to meds imitrex, sumavel, zomig, etc. with no success. Recently I was put on 20mg of Namenda a day. Ive also been working with an anesthesiologist for the last year. Every 8 weeks I see him and get a propofol infusion, bilateral occipital nerve blocks, and bilateral orbital nerve blocks. He sometimes gives me trigger point injections in my neck and shoulders if they re bad. The combination of the Namenda and my treatments with my anestheologist have helped. The biggest change I ve noticed are the reduction of blocks (consecutive days at a time with 10 rated migraines). Now that said I was so excited about this that I jinxed myself. 5 days after my last treatment I had my worst block ever which was 7 days. It had me doing the ugly cry at times as well as giving have anxiety attacks. I m sure you ve all at some point made that trip to the er with an unrelenting migraine so you re familiar with the usual cocktail. Most times for me it was zofran, torodol, and morphine. In the last couple years I ve become allergic to narcotics. Now anytime I take morphine, norco, Percocet I itch uncontrollably all over even with prescription antihistamines (not so fun with surgeries).
When I ve had 10 rated conservative days of attacks my neurologist puts me on a 2-3 day heavy prednisone regime to knock it out. Didn t work this time. I called my anestheologist after the second day and he told me to meet his fellow at the er at 6am the next morning (I live in in a suburb of Chicago and all of my docs are at Rush University Medical Center so this is not the neighborhood hospital). I do not have high blood pressure but it was 175/115. They did a CAT scan, pumped me up with all kinds of meds as well as a lidocaine drip up my nasal cavity. After 8 hours nothing worked. He had me come back to see My anestheologist first thing the next morning for another infusion. It was still there after a two hour infusion. I was crying and begging him to admit me. I told him I would rather be on a morphine drip or any kind of pain meds and itch rather than endure this crippling pain anymore. It took both him and another doctor to calm me and explain that it could take up to 24 hrs to work and break the cycle. They also explained why not to admit me. Bottom line too much commotion to get the quiet rest that I needed. They gave me fioricet and norco. Fioricet to help the additional tension headache and Norco because I insisted. Hallelujah!!! The next morning I was still in a ton of pain but was getting better.
Somewhere someone mentioned sneezing postdrome. Holy cow! Only after I started counting I sneezed 17 times in less than 15 minutes. That was a new one. I was getting better, doing a few easy tasks at home, but still sore and still sleeping a lot. Post day 2. Now after my whole story (thank you for hanging in there and listening) I have a question. The headache is back to the norm for me, body is still very sore, I m still very tired and my vision is blurry today! Why??? Blurry vision usually happens before and/or during. Has anyone else had this happen postdrome and end up fine? Or, is this just a precursor to starting all over?
I would be awesome if we could make some kind of poll. List everything: duration/meds/diet/symptoms/how it affects relationships employment/when they started/etc. , etcБ Also, I was wondering how many of you had childhood migraines that manifested themselves as stomach aches. I was one of those. My parents used to tell me Бit was all in my headБ or nervous stomach (HaHa! ); little did they know it really had something to do with my БheadБ. I had stomach issues as a child too. It usually presented after I ate, but not always. I wasn t a nervous child but was prone to worry and anxiety at times. I was an over-worrier. П As an adult, the stomach issues have changed.
I was diagnosed with IBS years ago but the IBS like symptoms occur fairly infrequently now and when they do I just have to deal with them as they come. I believe the IBS has been controlled by my low dose of anti-anxiety medicine (just my own theory). I began having panic attacks when I was 19. They lasted for about 5 years and then I decided to seek treatment, which helped greatly. Now I have Generalized Anxiety Disorder. I take Lamictal and Klonopin. On to migraines I have classic migraine with aura, and sometimes clusters (a week or so with 2-3 per day, each with full aura). The clusters are pretty rare thankfully. I am 35 and had my first migraine at 17. I have been on several triptans which have worked and then stopped working. I am now taking Maxalt as needed. I had my most recent migraine 2 days ago and took a Maxalt during the aura phase. It prevented the migraine pain but gave me the tightness in my throat, fatigue, general malaise. The hangover has been pretty bad since. I cannot even muster the strength to shower. I have been in bed, sleeping off and on for almost 48 hours now. I have lower back pain. I have had the opposite effect that most of you describe with regards to loss of appetite I have been starving. I am so hungry, constantly. Very odd. Anyway, if any of you remember the movie When A Man Loves A Woman the line where Andy Garcia says to Meg Ryan I think we have all we can handle with our little cup and little spoon or something like that that pretty much sums up my postdrome phase.
I m ready to feel normal again. I hate migraines. I hate that so many of us suffer. duration/meds/diet/symptoms/how it affects relationships employment/when they started/etc. , etcБ meds Maxalt as needed, ibuprofen to help with the throat tightness symptoms aura begins with small dot or small jagged line, jagged line gets longer and wider and I cannot see, then migraine pain sets in unless I have taken medicine. without medicince, or if the medicine does not work: horrifying, stabbing, pulsating pain in my eye and side of head, sensitivity to sound, light, smell, slurred speech, sometimes numb/tingling in face/lips for about 3 hours. relationships/employment i currently do not work and am an online student. thankful for the flexibility if/when anything happens. the cluster episodes put a strain on my marriage. not sure why. maybe b/c my husband cannot fix it. (i will add triggers) stress, strong floral smells, hormonal changes, possibly weather changes not sure. almost seems like a perfect storm situation; if i m pre-menstrual, and stressed, i will likely get a migraine. if i m stressed, and smell a strong perfume, i will likely get a migraine. etc.